Should you tell your children they have increased cancer risk?The Breast Cancer Site
By Robin Wulffson MD for eMaxHealth.com
Should you tell your children they have increased cancer risk? According to a new study, the answer is “yes.” The majority of parents who are tested for BRCA1 and BRCA2 genes share those results with their children. In addition, many parents even discuss the results with very young children. The study was published online on January 9 in the journal Cancer. The BRCA1 and BRCA2 genes indicate an increased risk to both breast and ovarian cancer.
The study group was comprised of 253 parents who completed a telephone interview. The average time from the receipt of the genetic test result to the interview was 21 months; the parents had a total of 505 children younger than 25 years. They noted that, when informed of the test results, most of the children did not appear to be distressed. The most frequently reported responses to test results were neutral (41%) and/or happiness/relief (28%); however, some parents reported that their children were concerned (13%) for their parents, themselves, in general, or for other family members. A small percentage (11%) reported that their children expressed distress (were upset, scared, avoidant, or fatalistic) in response to being told the news. About 7% of the parents noted that their children did not seem to understand the information; 5% asked questions or were curious (5%); and 4% appreciated the information or found it useful.